At 46 i was diagnosed with xdp a rare
degenerative disease with origin from panay island afflicting the males
2,000 years ago. The ration of affliction is 5 in every 200,000 population in Panay Island. In a span of 5 to 10 years it can be dibilitating with
focal to generalized dystonia combined with parkinsonism.
The disease is a genetic mutation, it is not acquired or lifestyle generated, it was genetically passed on. It has no cure but can be medically suppressed. Symptoms has began to manifest even before i was diagnosed, my jaw twitches, later my torso twitches too like tic disorder. It started from a voluntary urge to twitch but my doctor says xdp may also start as a tic and progresses to focal dystonia.
The disease is prevalent in Capiz, Aklan, Iloilo and neighboring areas of Panay Island with locals calling it by various names like sumpa, inaswang, nakulam, etc. in the absence of genetic diagnosis. But plain and simple it is sex linked dystonia parkinsonism (xdp), panay distonia or lubag. My mother is from Dumarao Capiz and my father is from Jaro, Iloilo.
I am now 47years old and is bravely awaiting for that rapid generation to strike. God willed I have no kid to carry the gene but He gave me a wife as my bastion of hope to fight it out whatever harsh future is in store. I sternly hope it wont come, that I may just enjoy life to its fullest with my wife. This 2017 and onwards Lord we are ready. May your will be done.
