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I read somewhere that as time goes by dystonia diminishes and replaced by parkinsonism. I would prefer that rather than this twisting experience. But I would prefer none of both if given the choice. But sadly, I have no choice.
Josua Jaena was a sales director of a radio network. In July 2015, at age 45, he was diagnosed to have XDP, X-linked dystonia parkinsonism disease or Lubag ("twist" in Ilonggo). He has both parkinsonism and generalized dystonia which affect his walking and posture. In June 10, 2019 he underwent deep brain stimulation surgery (DBS). It was successful but he needs medicines for his maintenance for life. XDP is a progressive disease.
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